Hi! I’m Kate and I have chronic migraines. I always feel like such a drama queen when I describe my migraines, which is why I don’t usually tell people what they’re like. It’s hard to explain feeling like you’re dying, but also knowing you’ll be okay and just have to endure it. I also don’t want anyone to feel bad for me, or pity me.
When I first started listening to Sickboy I never considered myself a candidate for a contributor. After all I wasn't sick, I've just got some fun facial scaring. But it quickly became apparent that sickboy wasn't for the morbid curiosity of hearing about sickness. It is a series of conversations about difference in the human experience. I'm glad I got to share mine.
When you have as many allergies as I do, you start to think of life as an iceberg- there’s the parts of life that people see, but there’s also a huge amount of health management that goes on under the surface. For example ,throughout my childhood, I was responsible for sorting and counting my pills every Sunday nigh
While we were supposed to be setting up for Camp we found ourselves geeking out over our latest favourite discoveries in the world of music which suddenly led us into the story of his Cancer journey, a wild ride of love, heartbreak, beauty, terror and wonder. I feel so grateful to have met this human and have had the opportunity to escape the busy and hectic life of social media and technology, hunker down in a hut on the beaches of Maui and have an hour and a half of real talk.
That may mean two people from a car crash, lying on the floor, 1 with a stroke, 2 pregnant women in labour, three mothers with fevered children, two of whom are unconscious. The driver, with no medical knowledge, and a nurse, with limited skills, sit in the front while the patients fend for themselves in the back. There are no paramedics, no ‘pre-hospital’ or out-of-hospital care. But, if they survive long enough to get to the Emergency Department, they have a chance now whereas three and a half years ago they did not.
Throughout my childhood and adolescence people would occasionally marvel at how my knees extend backward when i stand or my elbows remained in a constant state of hyperextension, but it was normal, right? My mother and my sister and my grandmother, they all had the same traits so it couldn’t be that unusual.
Celiac is an auto immune disease. You know that because you listened to this podcast (I hope!). What I find fascinating about this disease is that the only cure is food – or lack of food. Namely gluten. It’s led me to spend many hours, probably too many, becoming obsessed with how food can heal and harm you at the same time. I’m not someone who believes that gluten is evil (well not for everyone at least) but I do think that some foods can do some serious harm to our bodies.