Hey I am Adam Delorey, I went into heart failure at the age of 13 when my ejection fraction (heart function) was at 11%!!!
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Experiencing a mental illness and trying to tell people about it is kind of like convincing people that you’ve experienced a ghost.
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My name is Melissa, I’m 29 and I have Profound Unilateral Hearing Loss. You won’t see me using sign language or using subtitles though...I actually function just fine, to the point that you would probably never realize I am considered clinically deaf.
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Ever heard of XLP? Are you currently thinking what the heck is that? Then you're in the same as most other people.. XLP is called an orphan disease as it is rarer then rare. XLP is a illness that effects 1 in a 1,000,000 men. I hope that while reading this, you will come to understand how this has has affected my life.
Get ready for some heavy…
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Hey I’m Ashleigh, also known as the girl who’s organs are falling out of her Va-jay-jay. I have what is called a pelvic organ prolapse and it’s pretty painful and shocking when you first notice it.
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Hey 👋🏻 I’m Lainie and I have alopecia aerata. While I’m not ‘sick’, I am living with an autoimmune disease that has no expiration date. It’s not contagious, it’s not caused by stress, and there is no cure. I found the first spot on my head three years ago, and since that date, I have lost all of the hair on my head, cyclically, at least twice.
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Caitlin Doughty is a mortician, activist, and funeral industry rabble-rouser. In 2011 she founded the death acceptance collective The Order of the Good Death, which has spawned the death positive movement. Her first book, Smoke Gets in Your Eyes, was a New York Times best-seller. She lives in Los Angeles, where she runs her nonprofit funeral home, Undertaking LA.
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This week we come to you from Jeremie's ultra slick looking private hospital room!
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Four and half years ago, I lost my two and half year old son Tommy unexpectedly. Tommy’s birth and death were both deciding moments for me. Initiations. A gateway to a new life. I’ve written online about my navigating through loss in a project I call the Grief Project.
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The big Ds (disease, divorce, death, disaster) are checkpoints, if we allow them to be. They are a moment of pause and reflection to take stock of our lives… yes, they cause a wee bit of YOLO, the knowledge that this is it.
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In July of 2017 I was a perfectly healthy 29 year old newly engaged woman with major baby fever. By August 2nd I was a breast cancer patient meeting with a surgeon who used words like “outcomes” and “chances of survival”, learning that I would be given every breast cancer treatment in the book which might leave me infertile.
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Hi, I'm Alexis. I experienced amniotic band syndrome in the womb, so I was born with a congenital amputation on my left arm. Well, maybe 'amputation' isn't actually the best word to describe my limb difference, because I never really had a whole arm to begin with.
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Audrey Parker is a woman with a plan. With stage 4 breast cancer that has spread to her bones and her brain, she has decided to end the suffering on her own terms. Today, Audrey Parker dies through the service known as MAID (medical assistance in dying) and she is doing it with grace.
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And every day I am alive continues to be funny and fun. My heart still works, and my tit is still nice and quiet. Life gives us the weirdest gifts, and I will always be awestruck by how awesome it is. I will forever be the Fearless Girl, but having friends that move, motivate, uplift and inspire me like Brian, Jeremie, and Taylor, make me TRUST more, FEAR less, and LOVE LIFE MORE DEEPLY.
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My name’s Matt, I’m 27 years old, and I have a severe stutter. Stuttering is generally defined as a speech disorder where you involuntarily repeat or prolong sounds or syllables while speaking, in addition to moments where speech (again, involuntarily) has unnatural pauses or blocks.
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This whole experience, talking about my disability/condition/shit with Jeremie and the boys (even writing this) has been really cathartic and positive and helped me channel a lot of built-up angst and confusion into something positive.
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I was dehydrated, starving, and had lost several pounds, yet no one—not even my doctor—knew why.
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…Then he tried to use a speculum, and that would be when I almost booted a medical professional in the face. Hey, I’m Molly. And I have vaginismus.
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Money. We all need it. But what happens when your health means you can’t earn it? Or your diagnosis means you need way more of it. Or what about what to do with it once your time is up?
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Next came the results from the biopsy. A Giant Cell Tumour, thankfully benign, but the flip side to it all was that this type of tumour is quite rare and due to the location, it would be incredibly dangerous to remove.
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