Imagine being compelled to do or say the worst possible thing at the worst possible time. This could include shouting the “N word" in your class at school, farting on a date, or yelling “Bomb!” in an airport.
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Based on my experience of living with Narcolepsy, I offer you a few nuggets of wisdom to help guide you in supporting the people in your life, or the people you will encounter, who are living with illness. Consider this a crash course in support ‘networking’…
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I’ve had a diagnosis of major depressive disorder for longer than I haven’t. It started when I was about ten years old. Between the ages of twelve to seventeen, it was severe. I became addicted to suicide. I saw death as the solution to what I felt like was a constant catastrophe inside me.
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The saying goes “If you fall down, you get back up” but sometimes you have no choice but to lay there bleeding to death on the ice wondering if you just killed yourself with your figure skate.
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Being sick sucks. I say it time and time again. But I truly believe we all have the strength to find the silver lining in the struggle. To find and embrace the humour within the experience of illness.
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A beautiful Sunday afternoon swimming in a backyard pool with my boyfriend and a couple of friends, quickly turned into the most terrifying day of my life.
An innocent dive, changed everything for me, and the lives of my loved ones, forever...
DID YOU KNOW there are no laws about how long you can keep your dead loved one around as long as you are not committing an indignity to the body?
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This week on Sickboy Podcast the fellas sit down with each other and catch up over stories of flame throwers, Polio, Bowen technique, pimple popping and more.
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I have decided to go through a 27 day cycle of radiation. I'm going to pass on the chemotherapy. I have an 11 year old daughter and we want to spend our time experiencing life and participating in research about these brain tumours.
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It’s hard. At times brutally hard. The resiliency required by the day-to-day life of a chronically injured/ill person is tremendous. I feel it all the time. That’s why I map out three months of treatments and appointments in advance.
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While most people with a physical disability can’t change their disability, public stigma around disabilities can change. It is awareness like the sickboy podcast who help brake down these barriers for people with any type of disability.
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Finding out a ton of stuff about your own reproductive system at 17 was jarring. I kind of felt like all I really needed to know at that point was how to take a birth control pill and track my period. AKA how NOT to get pregnant, but because of a congenital abnormality in my uterus, I stumbled upon a lot more information that I ever expected, and learned a lot about my anatomy and how my systems work.
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I wanted to talk about my experience with Schizophrenia because I stayed quiet throughout the important years fighting this disease alone, when I should have voiced it more when I was in the middle of it. What has happened to my mother is the biggest tragedy of both our lives, her struggle with this disease has been fiercely crippling and I will love and miss her to no end.
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Fade out and in to a room full of loudly talking people; they manipulate my beat-up body and take x-rays, whilst talking among themselves about coffee and mornings, as I lay sobbing in pain and confusion on the table.
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“Guys like curves” my mom joked as I cried in the doctor’s office at 13 years old. I was diagnosed with scoliosis at 10 but this was the first time the word “severe” was tacked on. I had just found out that I needed to start wearing a back brace.
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My vision loss allowed me to focus and see the blocks in my life. I am simultaneously continuing to search for new ways optimizing/biohacking my inner world and outer worlds to maximize my potential as a loving human being.
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There is a lot of crossover between what Sickboy is about and my podcast, Pondercast. Both are trying to get at what matters - at the deepest feelings and fears we try to ignore (only to have them blow up our lives at the most inopportune moments!)
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I have a dual role in the health care system right now - I am both a patient and a doctor.
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At one point in the recording (as you’ll hear), Jeremie says something to the effect of: “So, being confined to a wheelchair.” In this moment, I immediately corrected him and asked that he call me a “wheelchair user”. He apologized and corrected his language.
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