What the heck is XLP?!

Ever heard of XLP? Are you currently thinking what the heck is that? Then you're in the same as most other people.. XLP is called an orphan disease as it is rarer then rare. XLP  is a illness that effects 1 in a 1,000,000 men. I hope that while reading this, you will come to understand how this has  has affected my life. 

Get ready for some heavy…

Read More
A Woman Balding In Her 20's: Alopecia

Hey 👋🏻 I’m Lainie and I have alopecia aerata. While I’m not ‘sick’, I am living with an autoimmune disease that has no expiration date. It’s not contagious, it’s not caused by stress, and there is no cure. I found the first spot on my head three years ago, and since that date, I have lost all of the hair on my head, cyclically, at least twice.

Read More
The Order Of The Good Death w/ Caitlin Doughty

Caitlin Doughty is a mortician, activist, and funeral industry rabble-rouser. In 2011 she founded the death acceptance collective The Order of the Good Death, which has spawned the death positive movement. Her first book, Smoke Gets in Your Eyes, was a New York Times best-seller. She lives in Los Angeles, where she runs her nonprofit funeral home, Undertaking LA. 

Read More
Sickboy AdminComment
How To Grieve

Four and half years ago, I lost my two and half year old son Tommy unexpectedly. Tommy’s birth and death were both deciding moments for me. Initiations. A gateway to a new life. I’ve written online about my navigating through loss in a project I call the Grief Project.

Read More
Sickboy AdminComment
Breast Cancer: What Goes Lump In The Night?

In July of 2017 I was a perfectly healthy 29 year old newly engaged woman with major baby fever. By August 2nd I was a breast cancer patient meeting with a surgeon who used words like “outcomes” and “chances of survival”, learning that I would be given every breast cancer treatment in the book which might leave me infertile. 

Read More
Sickboy Admin Comment
The Fearless Girl's Tit Cancer w/ Bif Naked

And every day I am alive continues to be funny and fun. My heart still works, and my tit is still nice and quiet. Life gives us the weirdest gifts, and I will always be awestruck by how awesome it is. I will forever be the Fearless Girl, but having friends that move, motivate, uplift and inspire me like Brian, Jeremie, and Taylor, make me TRUST more, FEAR less, and LOVE LIFE MORE DEEPLY.

Read More
Sickboy Admin Comment
T-T-T-TODAY JUNIOR: Severe Stutter

My name’s Matt, I’m 27 years old, and I have a severe stutter.  Stuttering is generally defined as a speech disorder where you involuntarily repeat or prolong sounds or syllables while speaking, in addition to moments where speech (again, involuntarily) has unnatural pauses or blocks.

Read More
Sickboy Admin Comment
Half naked and Delirious

This whole experience, talking about my disability/condition/shit with Jeremie and the boys (even writing this) has been really cathartic and positive and helped me channel a lot of built-up angst and confusion into something positive.

Read More
Sickboy Admin Comment